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Monday, June 15 • 3:30pm - 4:30pm
#131 L: Engaging Patients to Support the Modernization of ClinicalTrials.gov

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.00 Knowledge UAN: 0286-0000-20-661-L04-P; CME 1.00; IACET 1.00; RN 1.00

This forum will present findings from patient engagement efforts on needs for ClinicalTrials.gov modernization and discuss priorities. A panel of experts will provide interpretation of the priorities for modernization and include audience engagement.

Learning Objectives

Identify the phases ClinicalTrials.gov modernization efforts entail and describe users evolving needs; Describe the regulatory and policy obligations and goals for the ClinicalTrials.gov program;Identify what is most important for you or your organization as a user of ClinicalTrials.gov.


Rebecca Williams, PharmD, MPH


Catina O'Leary, PhD

Christine M. Crandall, MS

Deborah E. Collyar

T.J. Sharpe, PMP

avatar for Rebecca Williams

Rebecca Williams

Acting Director, ClinicalTrials.gov, NCBI, National Library of Medicine, NIH
Rebecca Williams, PharmD, MPH, is Acting Director, ClinicalTrials.gov at the National Library of Medicine, National Institutes of Health. She moved into this role after serving as the Assistant Director for over a decade. She is responsible for technical, scientific, policy, regulatory... Read More →
avatar for Deborah Collyar

Deborah Collyar

President, Patient Advocates In Research (PAIR), United States
Deborah Collyar has been a patient engagement leader since her first cancer diagnosis. She founded Patient Advocates in Research (PAIR) international communication network in 1996, "where research meets reality." Deborah infuses hundreds of patient advocates into research programs... Read More →
avatar for Christine Crandall

Christine Crandall

Head of Clinical Project Management, GlaxoSmithKline
Christine Meyer Crandall is the Head of Clinical Project Management at GSK with over 20 years of experience in project management and clinical operations. She is responsible for a team focused on the delivery of robust, quality data to optimize trial scenario planning and improve... Read More →
avatar for Catina O'Leary

Catina O'Leary

President and Chief Executive Officer, Health Literacy Media (HLM)
Catina O’Leary, PhD, LMSW, is President & CEO of Health Literacy Media (HLM), a nonprofit health communications company located in Saint Louis, Missouri and working around the world. HLM provides training for health care providers in clear verbal and written health communication... Read More →
avatar for T.J. Sharpe

T.J. Sharpe

Patient Advocate, Starfish Harbor LLC
T.J. Sharpe is a Stage IV melanoma patient who shares his journey through cancer in his Patient #1 Blog.  He was diagnosed in August 2012 with metastatic melanoma, weeks after his second child was born. He has undergone six surgeries and four immunotherapy treatments over two different... Read More →

Monday June 15, 2020 3:30pm - 4:30pm EDT
TBD Virtual Event Horsham, PA 19044
  05: Patient Engagement, Forum |   02: ClinTrials -ClinOps, Forum