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Thursday, June 18 • 5:00pm - 6:00pm
#532 OD: ON DEMAND - Setting a Strategic Foundation for Mutually Beneficial Collaborations Between Industry and Patient Organizations

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Component Type: Forum
Level: Basic

This forum will share recommendations and present examples for how companies can strategically and compliantly identify and engage priority patient organizations and patients to collaborate on shared goals across the drug development continuum.

Learning Objectives

Discuss best practices for evaluating and identifying priority organizations; Identify appropriate timing for conducting environmental assessments and how their insights can be used to enhance knowledge for cross-functional teams; Define the lifecycle of a patient organization, common challenges they experience and how industry can help organizations build capacity


Ellen Coleman, MPH, MS


A Comprehensive Approach to Patient Centricity: Case Study and Data Review of a Joint Pharma, Advocacy, and Partner Effort
Brianne Peters, MBA, MSN, RN

Aligning Advocacy Relations With Business Objectives: Practical Considerations
David G Dubinski, MBA

Industry Update
Jennifer Brandl

Patient Perspective
Mary McGowan


David Dubinsky

Head of Global Patient Affairs, Blueprint Medicine
Biotechnology company professional with extensive experience building and leading advocacy strategic vision, and the development, creation and sales of pharmaceutical brands. Expertise in stakeholder partnerships, team leadership, facilitation of information, and targeted marketing... Read More →
avatar for Ellen Coleman

Ellen Coleman

President and CEO, VOZ Advisors
As president and CEO, Ellen Coleman leads VOZ Advisors and is responsible for all aspects of the overall firm path and direction. Ellen brings considerable experience in working with patients with life-threatening and chronic illnesses giving her a view of the entire patient experience... Read More →
avatar for Brianne Peters

Brianne Peters

Director, Remote Visit Services, Firma Clinical Research
Firma is a boutique contract research organization that believes a patient-centric approach is the key to unlocking positive outcomes in the drug and medical device development process. Using an integrated suite of specialized solutions, Firma makes the clinical trials process easier... Read More →
avatar for Jennifer Brandl

Jennifer Brandl

Senior Clinical Trial Manager, Kezar Life Sciences
Jennifer Brandl is a Senior Clinical Trial Manager at Kezar Life Sciences. She has spent 13 years in industry research and clinical operations. Her innovative spirit has contributed to the successful implementation of many solutions accelerating clinical development in immuno-oncology... Read More →
avatar for Mary McGowan

Mary McGowan

Executive Director, The Myositis Association
With over 35 years of non-profit management experience, Mary McGowan currently serves as Executive Director of The Myositis Association. As the primary representative and spokesperson for this international rare disease advocacy organization serving patients, care partners, families... Read More →

Thursday June 18, 2020 5:00pm - 6:00pm EDT
TBD Virtual Event Horsham, PA 19044