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Wednesday, June 17 • 2:00pm - 3:00pm
#332 SL: Optimizing Communication with Patients to Support Meaningful Feedback into the Research Process

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.00 Knowledge UAN: 0286-0000-20-722-L04-P; CME 1.00; IACET 1.00; RN 1.00

Patient engagement is an essential component of the drug development process. Involving the patient community early on can accelerate and enhance research efforts. The process of securing input from the patient community in research is often conducted as a bidirectional process between industry sponsors and a community of people living with a common illness/disease experience. This process can be enhanced by including stakeholders with unique expertise in patient engagement and communication. These stakeholders enhance credibility and relationship building between industry and patient communities, which increases the success and quality of patient engagement, and optimizes the process of learning from patient communities. Patient advocacy organizations, patient engagement experts within a biopharmaceutical company and consulting organizations are all stakeholders that have unique expertise. In this session, examples of successful partnership with the patient community facilitated by each of these stakeholders will be discussed.

Learning Objectives

Recognize the different models of patient engagement and benefits of leveraging each to ensure early involvement of the patient community in drug development; Describe methods to encourage collaboration in therapeutic areas with multiple patient stakeholders to create and leverage a unified community voice; Identify best practices for capturing and interpreting meaningful input from special patient populations, such as people with cognitive impairment.


Karlin Schroeder, MA


Patricia Davies

Fernanda D. Copeland, MS

Madeline Corrigan, PhD


Madeline Corrigan

Senior Account Manager, SmithSolve
Madeline is an engineer by training and former clinical investigator, where she developed and evaluated an assistive exoskeleton for individuals with Duchenne muscular dystrophy (DMD). She has a unique, user-centered approach to developing new technologies, and applies the same patient-centered... Read More →
avatar for Karlin Schroeder

Karlin Schroeder

Associate Vice President, Community Engagement, Parkinson's Foundation, United States
Karlin Schroeder, M.A., is the Associate Vice President of Community Engagement at the Parkinson’s Foundation, where she leads the Research Advocacy program. Through this program, Karlin creates and directs projects to incorporate patient expertise into research design and implementation... Read More →
avatar for Patricia Davies

Patricia Davies

Reasearch Advocate, Parkinson's Foundation
Pat originates from the UK where she was Managing Director of a professional conference organizing company in London for many years. In 1991 she moved to Washington DC to head up the arrangements for the Annual Meetings of the World Bank Group & the International Monetary Fund, a... Read More →
avatar for Fernanda Copeland

Fernanda Copeland

Executive Director, Global Head of Patient Advocacy and Engagement, AVROBIO, Inc
Fernanda Copeland, MS, RD, CDE is a board-certified registered dietitian who spent the first 10 years of her career working with patients to educate and help manage medical conditions in inpatient and outpatient settings. Fernanda leads the Global Patient Advocacy & Engagement function... Read More →

Wednesday June 17, 2020 2:00pm - 3:00pm EDT
TBD Virtual Event Horsham, PA 19044