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Tuesday, June 16 • 4:00pm - 5:00pm
#247 SL: Engaging Caregivers in Research and Medical Product Development

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.00 Knowledge UAN: 0286-0000-20-680-L04-P; CME 1.00; IACET 1.00; RN 1.00

We will address ways for caregivers and care partners to participate as partners to inform R&D activities, including how their roles may be distinct from those of the patients whom they care for. The panel will draw on experiences – including professional experience and lived experience as caregivers – that span the various roles of caregivers in pediatric and adult settings. Panelists will explore ways in which the caregiver’s role can have a direct and positive influence in research activities, including their ability to influence patient participation and engagement in research activities. You’ll leave the session with a new understanding about the large and largely untapped reservoir of information that family caregivers and care partners can contribute to your program and ways to help them prepare for deeper engagement and more meaningful contributions to the research enterprise.

Learning Objectives

Recognize the unique and distinctive roles for caregivers in the setting of patient-centered research and patient-focused drug development; Identify opportunities to leverage caregivers’ unique insights and ways in which early engagement can benefit clinical development programs/projects; Assess hidden challenges that may exist in the patient/caregiver/healthcare provider dynamic that can impact projects and learn strategies to overcome challenges and build more inclusive programs.


K. Kimberly McCleary


Perception Versus Reality: What Are the Training Needs of Patients and Their Care Partners in Healthcare Innovation?
Sarah Krug, MS

Tools for Your Pediatric Clinical Research Engagement Toolkit
Lindsay Singler, MPH

avatar for Sarah Krug

Sarah Krug

Chief Executive Officer, CANCER101, United States
Sarah Krüg is the CEO of CANCER101, a patient advocacy organization whose mission is to help patients and care partners navigate cancer care and partner with their healthcare team to make informed decisions. Sarah is also Founder of the Health Collaboratory, a global innovation hub... Read More →
avatar for K. Kimberly McCleary

K. Kimberly McCleary

Founder and Chief Executive Officer, The Kith Collective, LLC, United States
Kim McCleary has been at the forefront of patient engagement for more than 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications... Read More →
avatar for Lindsay Singler

Lindsay Singler

Associate Director, Research Communications and Engagement, Duke Clinical Research Institute
Lindsay Singler, MPH, has more than a decade of experience in patient engagement from her time at Quintiles (now IQVIA) and the Duke Clinical Research Institute (DCRI). She recently authored a paper “Models of Engagement: Patients as Partners in Clinical Research” for Applied... Read More →

Tuesday June 16, 2020 4:00pm - 5:00pm EDT
TBD Virtual Event Horsham, PA 19044
  05: Patient Engagement, Forum